A web-based communication system for the integrated care setting of cerebral palsy: parents' experiences in a 6-month pilot in three Dutch care regions

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Gulmans, Jitske and Vollenbroek-Hutten, Miriam and Gemert-Pijnen, Lisette van and Harten, Wim van (2012) A web-based communication system for the integrated care setting of cerebral palsy: parents' experiences in a 6-month pilot in three Dutch care regions. International journal of integrated care, 12 . p. 672. ISSN 1568-4156

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Abstract:Introduction: To improve communication in the integrated care setting of children with cerebral palsy, we developed a web-based system for parent-professional and interprofessional communication. The present study aimed to evaluate parents’ experiences regarding the system’s contribution to their communication with professionals during a 6-months pilot in three Dutch care regions. In addition, factors associated with parents’ system use and non-use were analyzed. -
Theory and methods: The system’s functional specifications were based on key elements of the Chronic Care Model and quality dimensions formulated by the Institute of Medicine. At baseline, parents completed a T0-questionnaire on their experiences regarding sufficiency of contact, accessibility of professionals, timeliness of information exchange, consistency of information and parents’ role as messenger of information and/or care coordinator. After the pilot, parents completed a T1-questionnaire on their experiences regarding the system’s contribution to each of these aspects. -
Results: Of the 30 participating parents 21 had used the system, of which 20 completed the T1-questionnaire. All these parents indicated that they had experienced a contribution of the system to parent-professional communication, especially with respect to accessibility of professionals, sufficiency of contact and timeliness of information exchange, and to a lesser extent consistency of information and parents’ messenger/ coordinator role. In comparison with non-users, users had less positive baseline experiences with accessibility and a higher number of professionals in the child’s care network. -
Conclusions: All users indicated a contribution of the system to parent-professional communication, although the extent of the experienced contribution varied considerably. Based on the differences found between users and non-users, further research might focus on the system’s value for complex care networks and problematic access to professionals.
Item Type:Article
Copyright:© 2012 The Author(s)
Faculty:
Management and Governance (SMG)
Electrical Engineering, Mathematics and Computer Science (EEMCS)
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Link to this item:http://purl.utwente.nl/publications/78755
Official URL:http://persistent-identifier.nl/?identifier=URN:NBN:NL:UI:10-1-112786
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